Joni May Lang

1997 - 2007
LocationBarnsley
Age10 years
Date of Birth2/1997
Date of Death9/2007
Visitors2,951 since 29/10/2007
Creator

Joni was diagnosed with severe aplastic anaemia in Nov 2005 and in July 2006 had a stem cell transplant which went brilliant. Afew months on and Joni developed Graft versus Host disease where the donors cells started attacking Jonis organs. This eventually took her away from us and left us with a big gaping hole in our hearts, she was our brave hero at just 10yrs old.
From the start of Jonis treatment she had to know everything that was happening to her, she had always wanted to be a doctor, but after seeing how hard the nurses worked on ward M3 (Sheffield childrens hospital) she told her consultant that she did not want to be a Dr. anymore cos they didn't do anything so she was going to be a nurse instead cos they did everything.
Joni was gobby, never still, happy and our youngest daughter. She had a brother, Josh who was her best friend, and 4 sisters, Meg, Em, Annie and Nicola and how they miss her bossing them about the house and playing tricks on them.
Joni was a very caring girl aswell, she would help anyone especially the younger children who were on the ward often encouraging them to eat or get out of bed to play and she loved helping the nurses and winding them up. Joni was known for her bossiness by the Drs. often telling them what treatment she needed and quite often getting it right. I am told that the ward is now very quiet without her.
Joni knew before we did that she was going to die, asking to see her school friends before the summer holidays because she would not see them again. She went and had 3 hours with them and then fell asleep. Then when Joni was admitted into hospital in Aug 2007 she said one night "tell daddy to come I might not see him again amd then just let me go" Joni left us 2week later after we switched off her ventillater. She put her wings on at 7pm on the 9th Sept. I am sure she is now bossing everyone about and shouting at us everytime we cry, she hated to see us upset.
Mark, my husband, and I feel we have lost our sidekick. Joni had been at our side constantly for the last 2 yrs and but because she had been so strong then we have to follow in her footsteps and be strong for our other children now.
Just remember Joni we love you more and more everyday little our hero.

Gifts

Tributes

from mouse to brave lioness

joni the quite little mouse who hardly spoke, when you got ill you seem to take it all in yr stride even though yr body was ill your strength and personality grow bigger and stronger each day. I remember when i babysat you and Beth tried locking me in cupboard under stairs because i was afraid of spiders, or the time you stuffed pillow case with pebbles and sprinkled lavender drops cos i am allergic, laugh you thought it was so funny tears rolled down face. The day your day told us you wasn't going to make it shock every ones world, esp your mum, dad and sisters, never thought i would see so much pain in a persons eyes, but to the end you didnt care about your pain it was everyone else you worried for .That little girl is what maked you the special little girl you was. It never mattered or seem to matter what you thought of it all, all you cared was other kids like yourself , donating own money, so a little boys mum could fly in to see her dying son, raising money for wheel chairs it never stopped. But its 3 years since you went and we still miss you.Hope you looking down on us and its you who gives us strenght to carry on when things in life are badxx
love claire ,Jim and boys

Claire Hible

September 9, 2010

miss you Joni poni

Joni its Christmas time again and Emma and Lauren are missing you more then ever at this time of year. we have done our baking today you would have been proud of me doing all baking. i can just see you saying well done Jill, see you can do it cant you. you always used to take mickey out of me with my baking. miss you so much Joni, wish with all my heart that you were here with us and giving me some grief. have a lovely happy Christmas whatever you are doing. love you lots and lots.
all our love Emma, Lauren, Jill and Andrew xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Jillian Marshall (Mate)

December 21, 2009

merry christmas

are you and your friends ready for Christmas Joni poni, we all wish you were here for Christmas and you could come and visit us and stay over. hav a lovely day babes. love and miss you loads xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Jillian Marshall (Mate)

December 23, 2008

we had the pleasure of knowing joni for many years, she was 1 of the most beautiful and caring little girls i hav every had the privilage of meetin.my daughter emma was one of her best friends and she misses her so bad.on her birthdays and anniversary of her death we hav a little party for her and we sing happy birthday to her. i think helen and mark are truly amazing people and i admire them so much.i dont no how u get through the days iam sure i couldnt. miss u joni poni so so so much. all our love. emma, loz, jill and andy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Jillian Marshall (Mate)

October 21, 2008

we had the pleasure of knowing joni for many years, she was 1 of the most beautiful and caring little girls i hav every had the privilage of meetin.my daughter emma was one of her best friends and she misses her so bad.on her birthdays and anniversary of her death we hav a little party for her and we sing happy birthday to her. i think helen and mark are truly amazing people and i admire them so much.i dont no how u get through the days iam sure i couldnt. miss u joni poni so so so much. all our love. emma, loz, jill and andy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Jillian Marshall (Mate)

October 21, 2008

well,we got an application for a brionys gift yesterday and talk about wishing you were here!!! it was for a load of craft stuff for someone on ward i wished u cud have come and helped me pick it all!!! i`m sure tho that ive done u and briony proud cos got alsorts !! gunna punch some of those dresses out though that we did when u came thru here,havent used the punch since but it seems a shame to let it go to waste eh? miss you lots x you were very special to me x x

Meayla Woodward (Friend)

September 25, 2008

a yr

hiya jo-jo x sorry i didnt get on here yesterday....was busy with tommys party,he was 6 x I thought about you sooooo much tho,i really did x i`ll wont ever forget your anniversary will i? lol x i am goin to make some cards for pact for you again when i get my butt in gear!!! got my fingers in alot of pies at minute hunni so lots going on x
I ant seen ur mum n dad for ages so i hope they are ok and hope yest wasnt too hard for them x
never ever forget you joni.....NEVER!
you helped me soooo much when briony died x luvya 4 eva x x

Meayla Woodward (Friend)

September 10, 2008

A Keepsake

No more gifts can i buy you
now that you have gone to heaven above
The only gift i have now
is the gift of continuing love
I know you are resting peacefully
in a kingdom far away
I think of you and pray for you
each and every day
But you continue to give me gifts
my memories to treasure
Of all the happy times we shared
so many spent together
As i close my eyes and memorise
your all too familiar ways
My memories keep me near you
on the sad and lonely days.

ALL MY LOVE FOREVER

To A special Angel forever in our thoughts.xxx

Beckie Brice (Family Friend)

August 5, 2008

hiya joni x
miss u loads x
still seems so unreal that u are gone,its wierd but altho its been 11months almost -i still keep going to text you and see how you are,.....
keep wondering if you are at home or in hospital,
then i realise that you are with briony,i
didnt know you for a long time whad`ya think about 2 yrs or somat?
but you had a very special place in my heart from the very first moment i set eyes on your cheeky little face x
how you changed during the time you were ill,
only physically though,
and gradually your spirit dampened
but you were still a huge personality and i talk about you alot to people,
lots of things remind me of you at the minute,all the films that are coming out at the pics again.
wall;e -space chimps
i wonder if u would have liked them,
we went to prestwick last week and i thought about you there too,
about you being there on your birthday and me textin u but ur phone was on charge all day so u didnt get my text !!
then tommys birthday is coming up soon-but you will know the date of that wont u?
yep 9th sept the day your mum n dad were brave enough to let you go.
i miss u thats for sure ,not sure if angels grow up or not really,
but either way ur either turning into a stunning young woman angel or ur still joni as u were stunning sweet caring beautiful,-----the best x x
give bri a hug from me and i hug you too x x

Meayla Woodward (Friend)

August 2, 2008

remembering x

hiya joni love x long time no see so to speak,i been thinking about you alot today,mainly because its my birthday soon and i was remembering this time last year,you were in hospital alot an you kept texting me,you were wanting touy me something and i kept saying it was ok it idnt matter,you were determind to be able to come out and see me ormy birthday,i`m not sure exactly but i think we had asked you to come for a meal with us or something,anyway you didnt manage it in the end you were too poorly but the thought meant so much to me x you were really wonderful and i do miss you so much x x

Meayla Woodward (Friend)

May 25, 2008
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